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Bleeding Disorder Collaborative for Care

Legislative requirements

As mandated by the legislature, the Bleeding Disorder Collaborative for Care will:

  1. Identify and develop evidence-based practices to improve care of patients with bleeding disorders - with specific attention to health care cost reduction,
  2. Make recommendations regarding the distribution of the evidence-based practices, and
  3. Assist the Health Care Authority in the development of a cost-benefit analysis, based on the evidence-based practices identified.

Finalized documents

Public meetings

Date: Select Wednesdays (please click register link below for a list of specific dates)
Time: 7:30-8 a.m.

All meetings are open to the public and held via webinar. Please follow these instructions if you would like to attend:

  1. Register for the Bleeding Disorder Collaborative for Care.
  2. You will receive a confirmation email about joining the webinar.
  3. If you are calling into the meeting by cell phone, you will first have to login by computer to get your audio pin number.
  4. If you are logging into a notepad computer, you will have to download the GoTo Webinar app first.

2017 meeting schedule

Date Agenda Documents
June 28 Agenda  
June 14 Agenda  
May 31 Agenda  
May 10 Agenda  
April 26 Agenda  
April 12 Agenda  
March 22 Agenda  
March 8 Agenda  
February 22 Agenda  
February 8 Agenda  
January 25 Agenda  
January 11 Agenda  

2016 meeting schedule

Date Agenda Documents
December 14 Agenda  
November 30 Agenda  
November 2 Agenda  
October 26 Agenda  
October 12 Agenda  
September 28 Agenda  
September 14 Agenda  
September 7 Agenda  
August 31 Agenda

Draft consent form
Factor activity table
Updated research protocol

August 24 Agenda  
July 20 Agenda Interventions for hemophilia A & B slides
June 22 Agenda

Draft adverse event reporting form
Draft consent form
Draft eligibility form
Draft subject information form
Draft PK testing information form

June 15 Agenda Draft eligibility form
Draft protocol
Draft MED report
Transcript
June 8 Agenda Draft consent form
Draft eligibility form
Draft protocol
June 2 Agenda

Ideal body weight dosing worksheet
Draft consent form
Draft eligibility form
Draft protocol

May 19 Agenda Draft consent form
Draft eligibility form
Draft protocol
May 11 Agenda Draft consent form
Draft eligibility form
Draft protocol
Draft protocol clean BMI / IBW example
CDC growth chart
May 5 Agenda Draft consent form
Draft eligibility form
Draft protocol w/suggestions
Draft protocol clean
April 27 Agenda Draft protocol
April 20 Agenda Draft protocol
Research proposal
Transcript
April 13 Agenda Draft protocol
Transcript
March 31 Agenda Hemophilia dosing
Hemophilia home care
Hemophilia Ultrasound
MHPA hemophilia issue brief
Transcript
March 23 Agenda Hemophilia dosing
Hemophilia home care
Hemophilia ultrasound
MHPA hemophilia issue brief
Transcript
March 17 Agenda Draft protocol
Transcript
March 9 Agenda Draft protocol
March 3 Agenda  
January 28 Agenda Key questions
Statement of work (comments)
Statement of work (clean)
January 21 Agenda Contract
Key questions
January 14 Agenda Draft charter
Key questions
January 7 Agenda Draft charter
Key questions
Open public meeting training

2015 meeting schedule